STATEN ISLAND, N.Y. — “Once upon a time there was a princess named Chloe. She was strong, courageous and able to conquer every obstacle in her path. But now, she has outgrown her castle and needs the entire kingdom’s help to continue onward.”
The sweet little story above is featured on the flier a non-profit benefit concert for 7-year-old Chloe Alexis Daly at 6 p.m. Aug. 25 at Eve Ultra Lounge, 2354 Arthur Kill Road in Rossville.
But Chloe’s life is no fairy tale.
The Daly family asks locals to come join the fun at a fundraiser — co-hosted by Sal Criscuolo and Annmarie Triolo — for their “happy little girl” who’s been afflicted with cerebral palsy.
Chloe’s mom, Mary Rose Daly, pours her heart out when she recounts the harrowing ordeal she her husband, William, and their daughter were forced to endure on the day the day Chloe was born.
“Our lives have changed in a blink of an eye; my daughter has had more doctor visits than play dates, more hospital admissions than vacations,” Mary Rose says.
On tap will be entertainment by a DJ and the evening’s special guest is Judy Torres, aka “The Queen of Freestyle.” Donations are $50 per person or $60 at the door, which includes one drink.
After many weeks in the neonatal intensive care unit and subsequent visits with neurosurgeons, Chloe was diagnosed with spastic quadriplegia cerebral the type in which all extremities are affected with mixed spasticity and poor trunk and head control.
And the adorable little girl has been fighting her entire life.
“After a while, we were no longer concerned with the medical bills, it became more about how Chloe will function after all that has happened to her,” Mary Rose says.
“All the while praying and hoping she will wake up miraculously cured from her diagnosis, Will and I made it a point to stimulate her intellectually, at every moment possible.”
Although they were told Chloe would require an assistive device to help gain mobility, the Dalys pushed for her to try and remain independent of equipment.
Chloe continues to be treated at New York Presbyterian Hospital, the Manhattan health care center where she has undergone two neurosurgeries and making remarkable progress. But she has a long, hard road ahead of her.
William is a city bus driver with the Amalgamated Transit Union 726 and Mary Rose, a registered respiratory therapist.
The Dalys, who call the North Shore of Staten Island home, also have a 3-year-old son, Joshua Dean, who’s known as JD.
“We have dedicated our lives to giving the best of everything to Chloe” Mary Rose says, “whether it be the best doctors, therapists, therapy programs, equipment and we will continue to do so — but all that has left us in a financial hardship.”
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